October 19, 2012

What is this ME/CFS You Speak Of?

Posted in ME/CFS tagged , , , , , , , at 5:44 pm by Reva

Myalgic Encephalomyelitis(ME)/Chronic Fatigue Syndrome(CFS) was first described by the World Health Organisation (WHO) in 1969 as a neurological condition.  It is a complex condition with a wide range of symptoms that affect various systems in the body including the neurological system, the gastrointestinal system, the immune system, the endocrine system and the cardiac system.

While fatigue is a key symptom in diagnosis it is by no means the only, or for many sufferers the worst.  In fact one of the most common symptoms, experienced by approximately 95% of sufferers, is Orthostatic Hypotension, an often sudden drop in blood pressure.  Other common symptoms include sensitivity to light and sound, difficulty regulating body temperature, pain to varying degrees and irritable bowel syndrome.

While there is much debate around what constitutes diagnosis, it is largely a process of elimination although there are now a number of diagnostic guidelines around.  My doctor, used the Canadian diagnostic criteria for diagnosis, and I believe these are used by many doctors in Australia.

There are many theories as to the cause and there is slowly more research being done to identify the cause, or more likely causes.  This research will hopefully one day lead to a successful treatment but currently there is no cure.  I plan to write about treatment that people find helpful as a part of this blog.

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